Author Archives: rkdenlinger

Weekend Report… Joan says she feels like she is a volunteer for Handi*Camp (a ministry in which we served). Her “cabin” has two “campers,” Matthew and his roommate, whose mom has disappeared at the moment. Every other kid in rehab has a parent with them, except for Wayne. Wayne plays video games when not inContinue reading “Therapy and More Therapy”

Hospitalizations and times of crisis aren’t new to us. We’ve had times when Joan was in one hospital with a child and I (Ron) was with another. It was true with Kari and Ryan. It was true when we were foster parents to medically needy children. This experience isn’t quite like that, but it seemsContinue reading “Feeling old!”

Last evening at 11:00 Kari had a grand mal seizure. I wasn’t in the room, but I heard and instantly knew what it was. For the last couple days things didn’t seem right. Kari was just as awake, but not as oriented and maybe a little agitated. For over three weeks Kari hadn’t been havingContinue reading “Really good – not necessarily easy”

Notes throughout the day… Most significant update – NO Seizures! Not a single stare, funny feeling in his arm – not a thing since surgery. Dr Clancy just here with his teaching team, and they were really impressed with today’s movement. Afterward he made almost the exact comment Kennedy did the other day- ‘You (referringContinue reading “Day 10”

So my (Joan’s) sleep hours continue to be a bit wonky around here. Even so, my awake, alone times do afford me lots of time to mediate – something I had little time to do at home. I am so encouraged by your comments of rejoicing with our family as we traverse this medical path.Continue reading “Meditation”

Day 8 update: Unbelievable God stories coming out of CHOP this Monday! Dr Kennedy reports that Matthew is possibly the quickest recovery of this surgery that he has ever had! Just to make sure he was not missing anything, he ordered a CT scan of head. The results: No swelling in his ventricles nor doesContinue reading “Unbelievable”

Yesterday (Saturday) Matthew progressed from the ICU to the neuro unit. His new address is 9 South, Room 19, Children’s Hospital of Philadelphia, 3401 Civic Center Blvd, Philadelphia, PA 19104. Matthew continues to make progress. Overnight he became very chatty. He enjoyed watching the latest Calvary Kids episode on-line, talked with his dad over Duo,Continue reading “Transferred!”

Someone on “Team Matthew” must have been praying at 1 o’clock this morning! To that person I say, “Thank You!” I slept from 11-1 when I heard: “Mommy, I can’t get out of bed!” All the alarms were going off (a sound to which I’m getting inoculated, being in here 24/7). I jumped out ofContinue reading “Early Morning Prayers”

Matthew’s afternoon nap began later than usual this afternoon, so I decided to sneak in an outside walk until it was time to get him out in the chair again for dinner. I was sure he would not awaken before I got back. As I came down the hallway, I heard lovely classical music resoundingContinue reading “Black Tie Dinner”

I (Ron) am writing the update this time because things are getting busier for Joan and she is a little tied up. One of her constant jobs is to make sure Matthew is comfortable and isn’t grabbing at the drain coming from his head. When he is out in his chair he isn’t restrained, andContinue reading “Trending Upward”

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