Category Archives: Uncategorized

Today I had the difficult conversation with my son as to why it may not be a good idea to put on his Christmas wish list things that may be too difficult for him to use. He sees commercials with kids flying over half pipes on skateboards and battery-operated motor bikes that can go upContinue reading “Redirection”

First look at Kari’s new wheelchair – on Thanksgiving Eve In the spirit of the first Thanksgiving Grateful for an abundance of things this year! (including having friends like you)

Our little diva granddaughter had more than a photo shoot in Philadelphia today. Many doctors wanted to check in on her, so Jeremy and Sarah spent the day at CHOP. Her heart looks promising, blood flow is good so far. The swelling on her neck that captured the doctors’ attention eleven weeks ago (that putContinue reading “The Best Thanksgiving Gift”

Literally just last evening Joan and I were talking about Matthew’s hemispherotomy and our concern that he might not fully recover in his ability to walk with fluidity. And then this morning in therapy a new technology is applied to him – only the second kid at Schreiber to receive this. I think I’m justifiedContinue reading “Spinal Neuromodulation”

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Today we got a mini crash course in epigenetics (a word completely unfamiliar to me before today). We received our “Ted Talk” from members of the research staff at the Clinic for Special Children (Strasburg, PA). They came to our home to collect samples from our family – we agreed to be part of aContinue reading “Epigenetics”

One “diva” definition: female that expects special attention! So, I asked Jeremy yesterday if the little Diva was having her photo shoot (the new title I have for all the ultrasounds my sweet granddaughter is having these days). She has reached the awesome week 28 gestation, which for a Turner girl is a miracle! TheContinue reading “Our Little Diva”

That was the word we got today from our son and wife following the 27th week ultrasound. We are not sure who Mabel is but we are assuming that is the top-notch secret name given to our grandbaby girl. 😊 So now we are letting that secret out! But on the serious side: She hasContinue reading “Stable Mabel”

So, ultrasound of the week report is in. This is the first time this doctor has given a positive report.  This little one has moved from the prediction of 98% chance of miscarriage to the category of 2% miracle survival, and she is only at week 25! Jeremy and Sarah were told earlier that sheContinue reading “2% – Oh Baby!!!”

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So, our garbage collection day is Monday around here.  I am sure you all have a similar day where you hoist the week’s trash to the curbside. Today is not Monday but I am certainly thinking of trash today. Before 8 this morning I had cleaned out enough “garbage” from my two kids that itContinue reading “Call it Garbage”

Let’s keep the prayers going. Our little granddaughter is still giving Jeremy and Sarah a run for their money (and providing some cute ultrasound pictures). The week 23 gestation ultrasound reveals stability in that the hygroma on her neck has not grown and there is no extra fluid on heart, lungs, or other vital organsContinue reading “Reason for hope”

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