Category Archives: Uncategorized

There was room at the inn for the young couple with child (translated: Jeremy and Sarah are now in Philadelphia where they found an opening at the Ronald McDonald House). And while we wait, hoping and praying that all will be well, here is something that Ron has been thinking about… I, Ron, had toContinue reading “First Prayer Answered”

Baby girl loves to sit on that edge. After lots of testing, doctor debating, pros and cons, ups and downs, the decision was made, and Jeremy and Sarah are heading home from CHOP. Cardiologists are saying heart seems stable and they would like to give a little more time for her lungs to develop. TheContinue reading “Roller Coaster”

Sarah’s doctor says that our granddaughter is small but stable. Sarah and Jeremy are headed to the Children’s Hospital of Philadelphia (CHOP) for more tests this Thursday. Their doctor here says they should be prepared to stay, and in either case they will have a baby before Christmas – born at CHOP, with the possibilityContinue reading “A Baby Before Christmas”

Today I had the difficult conversation with my son as to why it may not be a good idea to put on his Christmas wish list things that may be too difficult for him to use. He sees commercials with kids flying over half pipes on skateboards and battery-operated motor bikes that can go upContinue reading “Redirection”

First look at Kari’s new wheelchair – on Thanksgiving Eve In the spirit of the first Thanksgiving Grateful for an abundance of things this year! (including having friends like you)

Our little diva granddaughter had more than a photo shoot in Philadelphia today. Many doctors wanted to check in on her, so Jeremy and Sarah spent the day at CHOP. Her heart looks promising, blood flow is good so far. The swelling on her neck that captured the doctors’ attention eleven weeks ago (that putContinue reading “The Best Thanksgiving Gift”

Literally just last evening Joan and I were talking about Matthew’s hemispherotomy and our concern that he might not fully recover in his ability to walk with fluidity. And then this morning in therapy a new technology is applied to him – only the second kid at Schreiber to receive this. I think I’m justifiedContinue reading “Spinal Neuromodulation”

Today we got a mini crash course in epigenetics (a word completely unfamiliar to me before today). We received our “Ted Talk” from members of the research staff at the Clinic for Special Children (Strasburg, PA). They came to our home to collect samples from our family – we agreed to be part of aContinue reading “Epigenetics”

One “diva” definition: female that expects special attention! So, I asked Jeremy yesterday if the little Diva was having her photo shoot (the new title I have for all the ultrasounds my sweet granddaughter is having these days). She has reached the awesome week 28 gestation, which for a Turner girl is a miracle! TheContinue reading “Our Little Diva”

That was the word we got today from our son and wife following the 27th week ultrasound. We are not sure who Mabel is but we are assuming that is the top-notch secret name given to our grandbaby girl. 😊 So now we are letting that secret out! But on the serious side: She hasContinue reading “Stable Mabel”