It is really happening. Matthew and I are leaving CHOP tomorrow, May 12!! It was exactly one month ago when we came here.
The staff here will be throwing him a party, which is awesome, but our earlier than expected departure is very much mixed with grief. Over the weekend my mother became weaker. After a lot of prayer, discussions, and seeking wisdom, I asked the rehab doctor if we could go home because Matthew needs to say “good-bye” to Grandma (who is also “homeward bound”) and Grandma definitely needs to see Matthew again. And I want to be there for my mom during her final days on this earth.
Ron says, “Although the hospice nurse says we need not be in a super big rush (though who knows) it would be more therapeutic for everyone to have Joan and Matthew back together with the family. And so we’re going to live the crazy life together rather than separately.”
A lot of strings needed to be pulled on my end, but the staff is fully confident that I will be able to keep his therapy going at home along with outpatient rehab I am getting set up in Lancaster. My sister says I am going from frying pan to fire. And she is right. I have no grandiose thinking that life is going to be easier, but we will be together. I say that a cord of three strands (Ron, me and God together) will be stronger.
Please pray that we can make this all happen and mostly pray for my mom who is very weak, that God will be a constant companion by her side!