Surgery

The good news is that I (Joan) finally have a tentative surgery date – August 8. That still seems a long time to wait as I’m constantly dealing with pain, it interferes with my sleep, etc.

The bad news is that they aren’t sure exactly what the surgery will look like. There is this other spot farther up the spine. And newer symptoms I’m having means that spot also needs to be addressed. So, I’m off for more x-rays today and an MRI of my entire spine on Tuesday.

I’m thankful that my doctor is being thorough. They seem confident that they’ll be able to address all the issues that I’m having.

As always, thanks for praying!

Motherhood – the Dream and the Reality

Happy belated Mother’s Day to all moms out there.

Jeremy gave me a card yesterday, pointing out that my motherhood reality is surely different than what I had dreamed. He deeply honored me by expressing appreciation for my rolling with all that has come my way.

My mind takes me back to the bittersweet day Jeremy was dedicated at our church, the very day that would have been his older brother’s sixth birthday. But Ryan was not there as had graduated to heaven six weeks earlier. In hope for what God would do in Jeremy’s life, I committed myself to 1 Samuel 12:23,24.

“As for me, far be it from me that I should sin against the LORD by failing to pray for you. And I will teach you the way that is good and right. But be sure to fear the LORD and serve him faithfully with all your heart; consider what great things he has done for you.” NIV

Today those verses were part of my Bible reading. I am so glad I chose those for his dedication as I realize how they are being fulfilled – Jeremy and his wife Sarah serving God faithfully with all their hearts. That is reality.

Shifting focus to my other living son – today Matthew passed a test with flying colors. It was a retesting of fifteen activities – none of which he could do a year ago. Following surgery Matthew could not walk. He was receiving intense therapy at CHOP’s rehab, but we were discharged early so that I could be by the bed of my mom who was dying. Discharged with the understanding that Matthew must continue to receive intensive therapy. And so, I determined to keep the May 18 appointment at Schreiber no matter what! And I kept the promise, as hard as it was to do so. During Matthew’s evaluation he told the therapist that his grandmother died. “I’m sorry, when did she die?” “Today,” replied Matthew. She quickly looked at me, her eyes desperately asking me if he was speaking reality. I nodded. It was true. We had followed the hearse out of our driveway. All those memories are vivid to me today. But the sadness is overtaken by how far Matthew has come.

This was my first celebration of Mother’s Day without my mother or my mother-in-law. Very strange to not have someone older to honor, but my children honored me incredibly. And that is reality.

Within this year, with other major crisis events behind me, it was time to address something I had been putting off. I started to “doctor” for a back injury, the impact of which I could no longer ignore. I’ve now done everything advised (therapy, shots, exercises) with no improvement, only decline. Extensive testing is complete, and I await the date of surgery – the thing my surgeon told me five months ago is unavoidable. I appreciate your prayers for me (so many of you have been asking for an update – thanks for your concern). The continuous pain makes waiting difficult. I hope for relief and yet the surgery and recovery aren’t things I look forward to – it appears my summer won’t be the most pleasant. One thing I’ve found while waiting in pain, I’ve become more aware of those who need prayer, many of whom need it far more than what I do. That too is reality.

The sentiment of the card is right. Not all dreams come true. But what is also true is that some of the blessings of my present reality far exceed what I had hoped for! I am very blessed to be mom to my precious children.

The Best is Yet to Come

For most of us, Mondays usually get us down. The start of another week and the usual grind of life: work, school, responsibilities, weekend a long way off! But I am dancing in my heart today – not my body (more on that later). My little granddaughter smiled at me yesterday. She seemed overjoyed to share her smiles as I chatted with her. This was her first for me. As her parents said, “She can play hard to get!”  As you know, Elia has had a fight for life, but with great care from her parents, God pouring His love into her, she is an overcomer!

That little girl and I make a perfect match these days.  She loves to be held and I love to sit. My back pain is worsening as I continue to wait upon the Lord and LGH for a surgery date for my back. It is becoming harder to hide the need to sit or lay down or whatever it takes to relieve the pain in the lower half of my body. Hence the no dancing rule in play. But snuggles I can do with Elia’s low weight – she is like a feather in my arms compared to my other two children who also love to snuggle. 🙂 Elia is a great reason for me to sit.

“The best is yet to come.” For reasons that I don’t have time to get into, God whispered those words in my heart (many years ago during a very stressful time in my life). I have been reminded of that promise from Him many times since. It was a very hard 2021 for us, but there were hopeful things Jesus kept before us: The birth of our granddaughter (despite being given a very poor prognosis before birth), the continuing healing of Matthew’s body after major, major surgery, and more life for Kari with better control over her life-threatening seizure disorder. But in the midst, my personal pain is worsening. I am constantly reminded it is now my turn for improved health. And, as Ron reminds me constantly, my best is around the corner too!

I must take short, level-ground walks every day to keep my pain at bay. On Saturday, I didn’t get out until just before a storm was rolling in. The clouds were incredible, and some very large fluffy ones were backlit with the final burst of the evening’s sun, darkness surrounding them. You know the scene – we all have viewed an awe-inspiring landscape that took our breath away. For just a few seconds, I imagined Christ coming back for us in those clouds. He didn’t come, as you know. But once again I was reminded that “the best is yet to come!”  Just around the next bend in the road, the glorious bridegroom is coming for his bride. And if you have received Him as your Savior, He will sweetly invite us into His glorious world.  All this haunted brokenness, evil and pain will be over. His Kingdom come! Easter is a few weeks away, when the Christian world celebrates his resurrection that makes all this possible. In the meantime, as we wait, pray and hope that he will make us more like Him on this earth.

“Why are you not angry with God?”

Joan was asked this question again, yesterday, for the fourth time within the last week or so. And so, Joan has been giving some thought to the question. And, she has given me permission to share this with you and offer some thoughts.

Before we give any answers, we wonder why the question and why now? Not sure we’ve been asked it before, and certainly not four times within a short time. In the past we’ve been asked things like: How do you do it? How do you go through all the hospitalizations? How do you keep having joy? How does your family keep having hope? How do you keep going?

Behind the older set of questions is the assumption that our life isn’t always easy, that there is pain and that there are disappointments. True! All of those are true.

And what is the assumption behind the present question? Are we supposed to be angry with God? Is that the most natural thing to do? Does it presuppose that God has ripped us off, that he is unloving and unfair? Is there something wrong with Joan that she is not angry with God? Or are the questioners simply looking around and observing that most people in similar circumstances are angry with God, or if they themselves experienced what we do, would probably be angry with God?

One assumption behind the question that is certainly correct is this: Joan is not angry with God. To that I can testify. She’s had lots of questions for God over the years. She has not hesitated to direct them to the Almighty. She’s been better at prayers of lament than anyone I know. Maybe that is part of the reason she isn’t angry. She doesn’t tend to let things fester and she comes to terms with things as they are.

Joan also resonated very much with the words of Peter recently (that is, Peter was quoted a few Sundays ago in a sermon at our church – a series entitled “When in Doubt”). Peter said to Jesus, “Lord, to whom shall we go? You have the words of eternal life, and we have believed, and have come to know, that you are the Holy One of God.” Though Joan doesn’t always like the way things are, what are the options? If she gets mad at God and cuts him off, what is left? He is the one who gives her life and joy.

“Why aren’t you angry with God?” Joan noticed that she has been asked the question when Kari has been by her side. “How old is Kari,” they ask. 35 years old. That is a long time to live with disappointment and to see Kari somewhat trapped within a body that doesn’t work well for her. So, maybe Joan wasn’t angry at first, but after all these years and the hope for a miracle behind her, maybe now would be the time for resentment to build? Maybe. On the other hand, even more reason to be grateful that Kari is still with us and that she keeps bringing us joy.

I will say this, and Joan said I am also free to share this… As time goes on, some things are getting harder for her. The issue is physical pain – sometimes unbearable. She needs back surgery. It is something that shouldn’t be put off much longer. Her back is her Achilles Heel. If she were to fall or have some other accident, she would be at high risk for permanent damage.

Her need for surgery may date back to an auto accident we were in ten years ago – hard to know for sure. All her hard work as a caregiver may have aggravated things and brought her to this point sooner. And then it took some time to come to terms with the idea of undergoing back surgery. But she is there now and if she has any remaining doubt, it is quickly wiped away by frequent searing pain followed by weakness and numbness!

Does all that drain her? Yes. Is she a little grumpy and less tolerant of the antics of the rest of us? Sometimes. I must be honest. 😊. But, even with physical afflictions added, and though it often gets to her, she still isn’t angry with God. Mostly, she is joyful. She is a WYSIWYG (what you see is what you get). If you didn’t notice she is in a lot of pain from time to time, it’s because she doesn’t tend to show it – either in public or at home.

So, when is the surgery? Don’t know. Elective surgeries like this aren’t being done right now. With the slowing of the Omicron variant, we’re hoping that will change soon. But even then, Joan is on a list with thirty-five others – that is just this surgeon’s list! And I’m thinking that when operating rooms begin to reopen for people like Joan, every surgeon will be jockeying for time in those cool, sterile, well-lighted places.

Pray for the preservation of Joan’s back in the meantime and that she’ll continue to be able to bear with her pain – she doesn’t seem to have a different choice right now. And pray that when the time comes, surgery will be a great help to her.

Home for Christmas

Sarah’s words are so beautiful that we’re going to let her share the good news…

As I sit here waiting to be discharged I can’t help but remember the fears we’ve had over the last few months… not knowing if I’d ever kiss my baby girls face, feed her, sing to her, or bring her home… “God is good all the time” is what I kept telling myself though when I imagined the worst possible scenario obviously that is a tough thing to believe! But Jeremy and I kept reminding each other of the fact that our girl kept defying the odds and God kept sustaining her each day. Now, with my baby down the hall waiting to go home with us, I am completely in awe of Gods goodness and mercy…this girl is such a gift- the best Christmas gift I could ever have imagined! Thank you all for your constant support and prayers! It’s amazing to see all the people coming around us – a lot of whom I don’t even know! You all are incredible and we can’t thank you enough. 

We hope you all have a Merry Christmas!

-The Denlinger’s (Jeremy, Sarah and Elia)

Reason for Joy

Joan had the great joy of spending a few hours getting to know her granddaughter this afternoon. Can you tell she had a good time?

Jeremy wrote in their caring bridge blog that there were some terrifying moments last night. He wasn’t overstating it. They’ve been told that the placenta was terrible, the umbilical cord very thin, the amniotic fluid low and the heart was decelerating. These are all things that can go with Turner’s that might cause the last few weeks of a pregnancy to be very high risk. And with all those things true for Elia Joy, the staff at CHOP are amazed at how well she is doing. We praise the Lord for CHOP in making the right call last night and also for Dr. Bayliss in Lancaster for his accurate diagnosis and level of concern.

In other words, there is a whole lot behind that smile of Joan’s.

We feel like we can’t say it enough: Thanks for all your prayers.

Name Drop!

Journal Entry by Jeremy Denlinger 

Author uploaded image

This has been a great day! 

1. We got the report just about an hour ago that her heart is looking great and the cardio team doesn’t believe surgery will be neccessary! She is being downgraded from the CICU to the CCU (not exactly sure what those acronyms mean,  but it’s good)

This very well may mean she is coming home with us when Sarah is ready (Christmas??)

2. Grandma D got to meet her and hold her for about 30 minutes. There were a lot of smiles!

3. We are ready to share her name with you all! Introducing: Elia Joy Denlinger!

Elia (Eh-lee-ah) is a derivative of Eliana which means God has answered. Sarah and I decided on this name before we even knew that this baby was going to require so many prayers. So having Elia’s name already etched in our minds and hearts was just an awesome reminder that God would answer us. That’s where her middle name comes in, God has answered, and his answer is Joy to the world!

We get a small taste of what that Joy can look like today as we look into our baby’s sweet eyes. But at this time of year we are also reminded that God has given the answer of Joy to the whole world in His Son Jesus Christ!

I confess I’m quick to jump to prayer when terrifying moments are happening like some things that happened last night, or throughout the past weeks. But I was not nearly as quick to jump to prayers of gratitude this morning as I was holding my baby. So join me now in praising God for this sweet gift to Sarah and I, and his answer to our Prayers, Elia Joy. 

– Jeremy and Sarah

Best Christmas Gift Ever

Baby girl Denlinger was born this morning (12-22-21) just after midnight. She weighed in at 5 lb 5 oz. Second prayer of strong lungs seems to be answered. There is one more specific prayer request – that she won’t need heart surgery. The nurse they spoke to about it last night said everything is looking great. There will be a cardiogram today.

Thank you for rejoicing with us,

Grandpa and Grandma Denlinger, Aunt Kari, and Uncle Matthew

PS If plans hold, grandma gets to see her this afternoon.